Resources

At Living Soul of New York ABA, we know that families navigating autism or developmental disabilities need quick access to trustworthy, organized information. Below is a comprehensive list of local Rochester-area and national supports for Autism, ADHD, developmental delays, Down Syndrome, intellectual and developmental disabilities (IDD), and more.

Local Resources – Rochester, NY

1. Developmental & Diagnostic Services

AutismUp

Programs for autism & developmental disabilities — fitness, classes, social groups.

https://www.autismup.org/

Golisano Children’s Hospital – Developmental & Behavioral Pediatrics

Autism evaluations, developmental assessments, feeding clinic, specialty care.
https://www.urmc.rochester.edu/childrens-hospital/developmental-behavioral-pediatrics.aspx

Kirch Developmental Services Center (URMC)

Interdisciplinary team offering autism & developmental disabilities evaluations and care.
https://www.urmc.rochester.edu/kirch-center.aspx

Strong Center for Developmental Disabilities (SCDD) – UCEDD
Supports individuals with DD/IDD and their families through research, training, and community programs.
https://www.urmc.rochester.edu/strong-center-developmental-disabilities.aspx

2. Early Intervention & Preschool Services (Birth–5)

Monroe County Early Intervention (EI)
Evaluations & services for children birth–3 with delays or DD.
https://www.monroecounty.gov/hs-ei

Monroe County Preschool Special Education (CPSE)
Ages 3–5 special education evaluations and services.
https://www.monroecounty.gov/hs-specialneeds-pre-k

Easterseals New York
EI, preschool programs, and developmental services.
https://www.easterseals.com/newyork/

3. School-Age Services & Special Education Supports

Mary Cariola Center
Education, therapy, and medical services for students with complex developmental disabilities.
https://www.marycariola.org/

CP Rochester
Therapy services, adaptive equipment, classrooms, and DD supports.
https://cprochester.org/

Starbridge
Special education advocacy, disability rights, and parent training.
https://www.starbridgeinc.org/

4. OPWDD, Care Coordination, & Adult DD Services

New York State OPWDD
Eligibility, Medicaid waiver services, housing, respite, family reimbursement.
https://opwdd.ny.gov/

Person Centered Services (Care Coordination)
Care managers for children & adults with DD.
https://personcenteredservices.com/

The Arc of Monroe
Residential, vocational, day programs, employment services.
https://www.arcmonroe.org/

CDS Monarch
Community living, day programs, employment training for adults with DD.
https://www.cdsmonarch.org/

5. Therapy Providers (Speech, OT, PT)

Unity Pediatric Therapy
OT, PT, Speech, feeding, sensory services.
https://www.rochesterregional.org/locations/unity-pediatrics

Step by Step Pediatric Therapy
OT, PT, sensory integration.
https://www.sbstherapycenter.com/

Bright Start Pediatric Services
EI & clinic-based therapy.
https://www.brightstartny.org/

6. Recreation, Respite & Community Support

AutismUp
Programs for autism & developmental disabilities — fitness, classes, social groups.
https://www.autismup.org/

Spectrum Creative Arts
Music & art therapy; adaptive lessons.
https://www.spectrumcreativearts.org/

YMCA of Greater Rochester – Adaptive Programs
Inclusive recreation & aquatic programs.
https://rochesterymca.org/

Best Buddies New York
Friendship & inclusion programs for individuals with DD/IDD.
https://www.bestbuddies.org/newyork/

National Resources

1. Disability & Developmental Support Organizations

The Arc (National)
Advocacy, policy, disability rights, family supports for IDD/DD.
https://thearc.org/

Autism Speaks
Toolkits, early signs, family support, advocacy.
https://www.autismspeaks.org/

Autism Society of America
National resource network, education, support.
https://autismsociety.org/

CDC – Developmental Disabilities
Milestones, screening tools, statistics, DD resources.
https://www.cdc.gov/ncbddd/developmentaldisabilities/

2. Down Syndrome & Genetic Conditions

National Down Syndrome Society (NDSS)
Programs, advocacy, education, research.
https://ndss.org/

National Down Syndrome Congress (NDSC)
Resources for families from diagnosis to adulthood.
https://www.ndsccenter.org/

Global Down Syndrome Foundation
Research, medical care guidelines, learning tools.
https://www.globaldownsyndrome.org/

3. Intellectual & Developmental Disabilities (IDD)

AAIDD – American Association on Intellectual & Developmental Disabilities
Education, advocacy, rights, and resources.
https://www.aaidd.org/

Administration for Community Living – Developmental Disabilities
Federal DD programs & national supports.

https://acl.gov/programs/aging-and-disability-networks/national-network

4. Parent Education & Professional Resources

Autism Navigator
Parent and provider training tools.
https://autismnavigator.com/

Autism Science Foundation
Research, family guides, education.
https://autismsciencefoundation.org/

Behavior Analyst Certification Board (BACB)
ABA professional standards.
https://www.bacb.com/

CASP – Council of Autism Service Providers
Best practice guidelines for ABA/DD providers.
https://casproviders.org/

5. Safety, Advocacy & Legal Support

WrightsLaw
Special education law & advocacy training for parents.
https://wrightslaw.com/

National Autism Association – Safety Resources
Wandering prevention, safety kits, emergency guides.
https://nationalautismassociation.org/

Helpful Online Tools

FindTreatment.gov
Locate therapy, mental health, or substance-use services.
https://findtreatment.gov/

Understood.org
Tools for learning differences, ADHD, behavior.
https://www.understood.org/

Parent to Parent USA
Nationwide family support networks.
https://www.p2pusa.org/

Teachers Pay Teachers

Free and fee-based materials for programs and learning.

https://www.teacherspayteachers.com/

Need Support? We’re Here to Help

Living Soul of New York provides:

ABA therapy
Parent training
Behavior assessments & plans
Collaboration with medical & school teams
Support for autism and other developmental disabilities
Community-based programming